OT: Food Allergies

[MHSL82]

Do any of you or your loved ones or friends have any food allergies?

My daughter completed her Oral Immunotherapy (OIT) treatment for her peanut allergy in January. She went from being anaphylactic to contact to eating 24 peanuts a day in 6 months.

Just wanted to let you know about the treatment if any of you knew someone. They have it for peanuts, tree nuts, soy, milk, egg, fruits, fish, and some shellfish. 60+ doctors around the country do it.

A few points for those who might look into it:

1. It's not experimental therapy; it's in private practice covered by most insurances.

2. The FDA regulates products like the peanut patch, the coming peanut pill, and the like. It does not regulate processes of food they have already approved, like peanuts. The FDA doesn't review, approve, or disapprove of OIT.

3. Any severity level can be treated, from mild hives to anaphylaxis from contact (airborne). Asthma or GI issues make it harder to start or finish, but can still be treated slowly.

 

[nuraman00]

How do you know if you have a milk, egg, or fruit allergy?

 

[nuraman00]

So did they give her pill to take orally or patch to wear, and she'd slowly increase the dosage?

Say you'd get a month's supply, she'd take the gradually increasing dosage, then go back to the treatment center and they'v evaluate her.

Is that the type of schedule?

Actually if it happened in 6 months, then probably a follow-up every 2 weeks seems more likely, right? What type of schedule was it, and how often did you have to go to the center?

 

[nuraman00]

Good thread.

 

[MHSL82]

So did they give her pill to take orally or patch to wear, and she'd slowly increase the dosage?

Say you'd get a month's supply, she'd take the gradually increasing dosage, then go back to the treatment center and they'v evaluate her.

Is that the type of schedule?

Actually if it happened in 6 months, then probably a follow-up every 2 weeks seems more likely, right? What type of schedule was it, and how often did you have to go to the center?

There's no medication involved, no patch, no pill. What they do, is take 1/250,000 of a peanut and mix it with Kool-Aid. 15 minutes later they would give 1/125,000 for peanut, etc. until they got to 40 micrograms in the first day. The second day they would start at 40 micrograms and build up to some amount. Any minor reaction like a stomachache, they would stop at that point and continue slower next day or the next week.

Then, we went home with a low dose and gave it to her in the morning and at night. The next week they gave a little bit more concentration and again the next week. Eventually, we got to a small amount of peanut flour and built up from there. Then it was 1 peanut, 2 peanuts, etc. until she got to 12 in the morning to 12 at night. We challenged her at 24 minutes after that and she passed.

They told us we should have 8 or more in the morning and eight or more at night for three months and then 8 a day after that. We instead gave her 12 in the morning at 12 at night every day. We figure by the time she gets to college and is responsible for herself, she would be OK to skip a day.

Research shows that everyone in the OIT treatment could go significant periods of time (weeks) without the peanut and still be protected. Half of the people who went to 3 to 4 years without a peanut could eat 20+ without a reaction. The other half could still go 10 or 12 without minor hives. So my daughter doesn't really have to continue eating it every day, but I don't see why not.

 

[MHSL82]

How do you know if you have a milk, egg, or fruit allergy?

Most people find out about their allergies by consuming the food accidentally and having a reaction. Then they have to either get a blood test, skin test, or process of elimination. You could also look at family history (which I don't have in any of my family or my wife's). Most allergists will just tell you to avoid your food forever and then when you accidentally consume you have reaction.

 

[nuraman00]

There's no medication involved, no patch, no pill. What they do, is take 1/250,000 of a peanut and mix it with Kool-Aid. 15 minutes later they would give 1/125,000 for peanut, etc. until they got to 40 micrograms in the first day. The second day they would start at 40 micrograms and build up to some amount. Any minor reaction like a stomachache, they would stop at that point and continue slower next day or the next week.

Then, we went home with a low dose and gave it to her in the morning and at night. The next week they gave a little bit more concentration and again the next week. Eventually, we got to a small amount of peanut flour and built up from there. Then it was 1 peanut, 2 peanuts, etc. until she got to 12 in the morning to 12 at night. We challenged her at 24 minutes after that and she passed.

They told us we should have 8 or more in the morning and eight or more at night for three months and then 8 a day after that. We instead gave her 12 in the morning at 12 at night every day. We figure by the time she gets to college and is responsible for herself, she would be OK to skip a day.

Research shows that everyone in the OIT treatment could go significant periods of time (weeks) without the peanut and still be protected. Half of the people who went to 3 to 4 years without a peanut could eat 20+ without a reaction. The other half could still go 10 or 12 without minor hives. So my daughter doesn't really have to continue eating it every day, but I don't see why not.

How do you get 1/250,000 of a peanut?

How do you even get a microgram of something?

When you went home, how did you have those low dosages? Do they come in some packet you tear open and put in the kool aid?

 

[nuraman00]

Most people find out about their allergies by consuming the food accidentally and having a reaction. Then they have to either get a blood test, skin test, or process of elimination. You could also look at family history (which I don't have in any of my family or my wife's). Most allergists will just tell you to avoid your food forever and then when you accidentally consume you have reaction.

What are some bad reactions to eggs, milk, or fruits?

Do all of the items you listed have similar negative reactions, if one is allergic? (I.E. rash, vomiting, etc.).

 

[cmc_rebar]

Is there any cure for being allergic to dumbass coworkers? Some days my reaction is so severe it's all I can do to keep from send them into a coma by choking them.

 

[MHSL82]

What are some bad reactions to eggs, milk, or fruits?

Do all of the items you listed have similar negative reactions, if one is allergic? (I.E. rash, vomiting, etc.).

I don't mean to be blunt, but a bad reaction could be death. Anaphylaxis affects all of those allergies.

Milk OIT has the most setbacks (quantity), but peanuts are the most common and often have the biggest reactions (quality). The only anaphylaxis I heard about in the office was to bananas and that wasn't OIT. That was a food challenge where they didn't have a reaction history and had low blood level allergies but slowly consumed a banana over four hours and at the very end they reacted.

My daughter's peanut allergy numbers went down with OIT for peanuts. We thought we had to do Hazelnut OIT, but the peanut treatment lowered the hazelnut numbers enough to challenge it in the office and my daughter passed it.

When it came time for my older daughter to have her first peanut, we blood tested my younger daughter and she didn't have the allergy. We gave my younger daughter her first peanut right before we went to the doctor's office so that if she did react, I would have medical staff around her. I didn't ask for permission because I was afraid they would say no but I knew that they were looking for reactions for anyone and I wasn't about to do it at home with no one around me. You do what you have to do.

 

[nuraman00]

I don't mean to be blunt, but a bad reaction could be death. Anaphylaxis affects all of those allergies.

Milk OIT has the most setbacks (quantity), but peanuts are the most common and often have the biggest reactions (quality). The only anaphylaxis I heard about in the office was to bananas and that wasn't OIT. That was a food challenge where they didn't have a reaction history and had low blood level allergies but slowly consumed a banana over four hours and at the very end they reacted.

My daughter's peanut allergy numbers went down with OIT for peanuts. We thought we had to do Hazelnut OIT, but the peanut treatment lowered the hazelnut numbers enough to challenge it in the office and my daughter passed it.

When it came time for my older daughter to have her first peanut, we blood tested my younger daughter and she didn't have the allergy. We gave my younger daughter her first peanut right before we went to the doctor's office so that if she did react, I would have medical staff around her. I didn't ask for permission because I was afraid they would say no but I knew that they were looking for reactions for anyone and I wasn't about to do it at home with no one around me. You do what you have to do.

Agree, this was in my mind when I made the above post.

Thanks for the info.

 

[nuraman00]

How do you get 1/250,000 of a peanut?

How do you even get a microgram of something?

When you went home, how did you have those low dosages? Do they come in some packet you tear open and put in the kool aid?

Bump?

 

[MHSL82]

Bump?

I imagine they put the smallest amount of peanut flour they can measure (whatever technology and physics allow) and dilute that heavily to get the proportion. I think it's more like 1/50,000th of a peanut (1g). Someone in the group said 1/250000 but the doctors don't tell you in that detail. They don't want do it yourselfers and it is trade secretish.

They gave us two weeks solution (in case we couldn't increase our dose the next week and were told to stay on the current dose for one more week) and we took a designated volume every morning and night. Shook it up well.

 

[nuraman00]

Aah, it comes in a solution. Thanks.

 

[nuraman00]

And, if I didn't say it explicitly before, I'm very happy that your eldest daughter doesn't have to suffer, or have as strong of a danger for, peanuts, anymore.

 

[MHSL82]

https://scontent-lax3-1.xx.fbcdn.ne...=2d19d9deed840dbf357f6b109f5583ef&oe=57D511B0

 

[MHSL82]

https://scontent-lax3-1.xx.fbcdn.ne...=2d19d9deed840dbf357f6b109f5583ef&oe=57D511B0

So they don't cut that it a hundred and measure each, they just dilute that amount by a hundred times or something. They must break it up in some way first.

 

[nuraman00]

Thanks, I'll watch it later.

 

[MHSL82]

Thanks, I'll watch it later.

Not w video, a picture.

 

[nuraman00]

So they don't cut that it a hundred and measure each, they just dilute that amount by a hundred times or something. They must break it up in some way first.

Not w video, a picture.

Thanks.

Good pictures.

I still want to see a video of how they all the smaller increments. How they dilute it, etc.